2017 Virginia Lee Franklin Memorial and Center for Nursing Excellence in Palliative Care Conference

Advances in Active Treatment & Palliative Care for Persons with Neurodegenerative Disorder

Dr. Rebecca Gary with patientThis conference presents recent evidence supporting patient-centered, team-based care to patients and families dealing with serious progressive illnesses affecting movement and cognition. Leading experts will address a range of topics focused on care improvement and clinicians’ roles in providing quality care to patients and families facing serious illness or end of life.

Friday, April 7, 2017
7:30 a.m. to 2:45 p.m.

Miller Ward Alumni House
815 Houston Mill Rd. NE
Atlanta, GA 30329

Attendees to this CNE activity will be awarded  5.0  contact hours by ENPDC.


  • Describe the unique needs and challenges experienced by patients, families, informal caregivers, and professionals in caring for patients with neurodegenerative disorders.
  • Describe a plan for comprehensive, integrated care of a person with a neurodegenerative disorder and their family caregiver(s).

Carolyn Clevenger, DNP, RN, GNP-BC, AGPCNP-BC, FAANP, Associate Dean for Clinical and Community Partnerships, Nell Hodgson Woodruff School of Nursing, Emory University

Dr. Clevenger holds a number of leadership positions in nursing education and practice at the School of Nursing and its clinical affiliate, the Atlanta VA Medical Center. In addition to her role as Clinical Director for the Integrated Memory Care Clinic, she is Associate Dean for Clinical and Community Partnerships and the Senior Nurse Scholar of the Atlanta VA Quality Scholars Advanced Fellowship program (more information at www.vaqs.org). She is Immediate Past President of the Gerontological Advance Practice Nurses Association (GAPNA) and a Fellow in the American Association of Nurse Practitioners. Dr. Clevenger’s commitment to nursing education, practice, and scholarship has garnered national acclaim. In 2013, she was named a Health Care Hero by the Atlanta Business Chronicle. The Gerontological Advanced Practice Nurses Association honored her with its Excellence in Education Award in 2010. She has served as a clinical expert for media outlets including Fox News, the Atlanta Journal-Constitution, Atlanta Magazine, and the Atlanta Business Chronicle. 

Jonathan D. Glass, MD, Professor, Department of Neurology & Pathology, Director of Emory ALS Center, Emory University

Dr. Glass received his undergraduate degree from Middlebury College (Vermont) and his MD from the University of Vermont. He trained in Neurology and Neuropathology at Johns Hopkins Hospital in Baltimore, where he was a faculty member until being recruited to Emory in 1996. He is widely known for his research on the pathogenesis and prevention of nerve degeneration in neurological diseases, and for his work in human and experimental neuropathology. His laboratory focuses on the study of ALS and other neurodegenerative diseases using animal models, cell cultures, and human tissues to investigate the causes and potential cures for ALS. Dr. Glass is also Director of the Emory ALS Center, which has grown to be one of the largest clinical centers in the Southeast, and is the co-Chair of the Northeast ALS Consortium (NEALS), an organization dedicated to advancing clinical research for ALS patients and their families. Dr. Glass is an active clinician who has been cited each year since 2001 as one of "America's Top Doctors" (Castle Connelly) and since 2005 as one of "Atlanta's Top Doctors" (Atlanta Magazine). He is also a teacher and mentor to young physicians and served as the director of Emory's Neurology residency program from 2001-2006.

Kathy Kinlaw, MDiv, Associate Director, Center for Ethics, Emory University

Ms. Kinlaw is Director of the Center's Program in Health, Science, and Ethics, an Assistant Professor of Pediatrics, Emory School of Medicine, and the Director of the Health Care Ethics Consortium of Georgia. Since 1994 Ms. Kinlaw has co-directed integration of Clinical Ethics into the School of Medicine's curriculum and enjoys teaching in multiple departments and modules, including residency programs. She led the development of the Master of Arts in Bioethics degree program of the Center for Ethics and the Laney Graduate School, and teaches core courses for the program. She currently serves as a member of the Georgia Composite Medical Board; the Committee on Ethics and Professionalism of the Federation of State Medical Boards; and the Advisory Committee for EBICS (Emergent Behaviors of Integrated Cellular Systems). Ms. Kinlaw co-chairs the Ethics/Legal Workgroup for the HRSA-funded, Georgia Department of Public Health HIV Health Information Exchange Challenge Grant. She has served as a member of the CDC Ethics Subcommittee of the Advisory Committee to the Director, and is actively involved in emergency preparedness scholarship and practice, including work on ethical issues in pandemic planning. Her publications and scholarly interests are primarily in the areas of palliative and end of life care, ethics and medical education, perinatal and neonatal ethics, the work of ethics committees, and public health ethics.

Susan Shapiro, PhD, RN, FAAN

Clinical Professor, Nell Hodgson Woodruff School of Nursing, Emory University 

Mi-Kyung Song, PhD, RN, FAAN

Professor, Director of Center for Nursing Excellence in Palliative Care, Nell Hodgson Woodruff School of Nursing, Emory University

Drenna Waldrop-Valverde, PhD

Associate Professor, Assistant Dean for Research, Director of Center for Neurocognitive Studies, Nell Hodgson Woodruff School of Nursing, Emory University

7:30 -8:00am

Registration & Breakfast


Welcome & Opening remarks
Mi-Kyung Song, PhD, RN, FAAN 


Advances in Treatments for Neurodegenerative Disorders
Presenter: Jonathan Glass, MD




Lived Experiences in Coping with Neurodegenerative Disorders
A conversation with patients and family caregivers
Moderator: Susan Shapiro, PhD, RN, FAAN


Ethical Challenges in Care
Presentation and discussion with two clinicians followed by audience participation
Presenter: Kathy Kinlaw, MDiv
Discussant: Alison A Schlenger, APRN-BC and George Grant, MDiv, PhD, DAPA




Primary + Palliative Care: the Case of the Integrated Memory Care Clinic
Presenter: Carolyn Clevenger, RN, DNP, AGPCNP-BC, GNP-BC, FAANP




Care Planning & Transitions
Panel Discussion with Social Worker, Visiting Nurse & Transitional Care Professional 
Moderator: Drenna Waldrop-Valverde, PhD
Social Worker: Lynn Ross, LMSW
Visiting Nurse: Valerie Fanning, RN
Transitional Care Professional: Anne McSweeney, LMSW


Wrap up and Continuing Education Instructions
Drenna Waldrop-Valverde, PhD

  • Drenna Waldrop-Valverde, PhD, co-chair
  • Mi-Kyung Song, PhD, RN, FAAN, co-chair
  • Carolyn Clevenger, RN, DNP, GNP-BC, AGPCNP-BC, FAANP
  • Susan Shapiro, PhD, RN, FAAN
  • Dianne Winsett

Emory Nursing Professional Development Center (ENPDC) is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center's Commission on Accreditation.

Attendees to this CNE activity will be awarded up to 5.0 contact hours by ENPDC.

No conflict of interest has been found with the speaker for this CNE activity nor with the members of the planning committee.

Virginia Lee Franklin earned a master’s degree in nursing from Emory University in 1957 and taught surgical nursing at the Nell Hodgson Woodruff School of Nursing.

To honor her after her death in 1981, her parents D. Murray and Katherine Franklin created the Virginia Lee Franklin Memorial Trust to benefit Emory nursing students and faculty. In the spirit of Virginia Lee Franklin’s commitment to teaching and to the specialty of neurology, the trust supports an annual conference dedicated to the advancement of neuroscience teaching, research, and practice.

This conference honors the memory of Virginia Lee Franklin because of her dedication to teaching and her loyalty to Emory. She is remembered by her colleagues as an excellent teacher, an advocate for the nursing profession, and a compassionate nurse.

The Center for Nursing Excellence in Palliative Care strives to prepare the next generation of leaders in palliative care nursing and transform the care for patients and their families with a life-threatening illness through discovery, education, and translation of knowledge to advance patient- and family-centered care.

The Center was established in the Nell Hodgson Woodruff School of Nursing in January 2016 with the generous gift from the Helene Fuld Health Trust. The Center also oversees the Fuld Palliative Care Fellowship (AMSN students) as a part of the Center’s education mission.

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Emory Affiliated


Non Emory Affiliated (other guests)


Late registration (after March 31st) 


At Door